Endometrio­sis: The unknown disease

by Britta
Endometriose, unknown disease, nicht die Regel, endometriosis, severe period pain, Information about Endometriosis, Vulvani

Endo-what? You might be won¬≠der¬≠ing what‚Äôs behind the term? I felt the same way a few months ago! But after I have learned more about the sub¬≠ject, I seri¬≠ously ask myself how it is pos¬≠si¬≠ble that so few peo¬≠ple have heard of the dis¬≠ease? Because 1 in 10 men¬≠stru¬≠at¬≠ing peo¬≠ple is affected by endometrio¬≠sis.  

Endometrio¬≠sis is more than just severe men¬≠strual pain 

There is so much more to endometrio¬≠sis than just severe men¬≠strual pain. It is a chronic, very painful and dif¬≠fi¬≠cult to treat dis¬≠ease of peo¬≠ple with an uterus. Out¬≠side the uter¬≠ine cav¬≠ity, uncon¬≠trolled growths of the lin¬≠ing of the uterus form. These endometrio¬≠sis lesions can grow and spread fur¬≠ther. Unfor¬≠tu¬≠nately, the mucous mem¬≠brane out¬≠side the uterus is also sub¬≠ject to hor¬≠monal changes dur¬≠ing the men¬≠strual cycle. The prob¬≠lem here, how¬≠ever, is that the bleed¬≠ing takes place out¬≠side the uterus and the mucous mem¬≠brane can¬≠not be prop¬≠erly dis¬≠charged here and flow out of the body. In short, it is a bit like a men¬≠strual period, only in the wrong place. 

The unknown disease

Endometrio¬≠sis is not a phe¬≠nom¬≠e¬≠non of our cur¬≠rent pros¬≠per¬≠ous soci¬≠ety, but has rather existed for decades. It is one of the most com¬≠mon chronic dis¬≠eases in peo¬≠ple with an uterus. Sta¬≠tis¬≠ti¬≠cally speak¬≠ing, we should all either know an affected per¬≠son our¬≠selves or at least know what endometrio¬≠sis is. But it is a dis¬≠ease that is often invis¬≠i¬≠ble and unknown to the pub¬≠lic. Because, as it often hap¬≠pens with womxn dis¬≠eases, endometrio¬≠sis has no lobby, no research funds. The lack of research also results in a lack of exper¬≠tise and deficits in treat¬≠ment. And so the causes, symp¬≠toms and treat¬≠ment options are still rel¬≠a¬≠tively unknown.  

March is world¬≠wide ded¬≠i¬≠cated to endometriosis

For a few years now, March has been con¬≠sid¬≠ered ‚ÄėEndo¬≠March‚Äô. This month, cam¬≠paigns are tak¬≠ing place world¬≠wide to pro¬≠mote the vis¬≠i¬≠bil¬≠ity and edu¬≠ca¬≠tion of endometrio¬≠sis in our soci¬≠ety. After all, rais¬≠ing aware¬≠ness of invis¬≠i¬≠ble dis¬≠eases is extremely impor¬≠tant. The focus is not only on endometrio¬≠sis, but also on other related chronic dis¬≠or¬≠ders and painful dis¬≠eases, such as myoma ade¬≠no¬≠myosis. 

Wishes for the future 

It is time that more peo¬≠ple know what endometrio¬≠sis is and that the dis¬≠ease no longer remains unknown in our soci¬≠ety. Peo¬≠ple with endometrio¬≠sis need a voice, a lobby. Because it is time to break taboo top¬≠ics and place womxn-spe¬≠cific top¬≠ics in the heart of our soci¬≠ety. This is the only way to get money invested for research¬≠ing  treat¬≠ment options and iden¬≠ti¬≠fy¬≠ing the causes of the dis¬≠ease. Because men¬≠strual pain is not nor¬≠mal and this must be socially recog¬≠nised! 

Published at 2. March 2020
Britta Wiebe is the co-founder of Vulvani. She loves researching, writing and designing new articles or innovative educational concepts about menstruation all day long. When she is not travelling the world, she enjoys spending time with her loved ones in the beautiful city of Hamburg in Germany. Facebook | Instagram | LinkedIn | Twitter

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