Endo-what? You might be won­der­ing what’s behind the term? I felt the same way a few months ago! But after I have learned more about the sub­ject, I ser­i­ously ask myself how it is pos­sible that so few people have heard of the dis­ease? Because 1 in 10 men­stru­at­ing people is affected by endo­met­ri­osis.  

Endo­met­ri­osis is more than just severe men­strual pain 

There is so much more to endo­met­ri­osis than just severe men­strual pain. It is a chronic, very pain­ful and dif­fi­cult to treat dis­ease of people with an uterus. Out­side the uter­ine cav­ity, uncon­trolled growths of the lin­ing of the uterus form. These endo­met­ri­osis lesions can grow and spread fur­ther. Unfor­tu­nately, the mucous mem­brane out­side the uterus is also sub­ject to hor­monal changes dur­ing the men­strual cycle. The prob­lem here, how­ever, is that the bleed­ing takes place out­side the uterus and the mucous mem­brane can­not be prop­erly dis­charged here and flow out of the body. In short, it is a bit like a men­strual period, only in the wrong place. 

The unknown disease

Endo­met­ri­osis is not a phe­nomenon of our cur­rent pros­per­ous soci­ety, but has rather exis­ted for dec­ades. It is one of the most com­mon chronic dis­eases in people with an uterus. Stat­ist­ic­ally speak­ing, we should all either know an affected per­son ourselves or at least know what endo­met­ri­osis is. But it is a dis­ease that is often invis­ible and unknown to the pub­lic. Because, as it often hap­pens with womxn dis­eases, endo­met­ri­osis has no lobby, no research funds. The lack of research also res­ults in a lack of expert­ise and defi­cits in treat­ment. And so the causes, symp­toms and treat­ment options are still rel­at­ively unknown.  

March is world­wide ded­ic­ated to endometriosis

For a few years now, March has been con­sidered ‘Endo­March’. This month, cam­paigns are tak­ing place world­wide to pro­mote the vis­ib­il­ity and edu­ca­tion of endo­met­ri­osis in our soci­ety. After all, rais­ing aware­ness of invis­ible dis­eases is extremely import­ant. The focus is not only on endo­met­ri­osis, but also on other related chronic dis­orders and pain­ful dis­eases, such as myoma adenomy­osis. 

Wishes for the future 

It is time that more people know what endo­met­ri­osis is and that the dis­ease no longer remains unknown in our soci­ety. People with endo­met­ri­osis need a voice, a lobby. Because it is time to break taboo top­ics and place womxn-spe­cific top­ics in the heart of our soci­ety. This is the only way to get money inves­ted for research­ing  treat­ment options and identi­fy­ing the causes of the dis­ease. Because men­strual pain is not nor­mal and this must be socially recog­nised! 

Britta Wiebe, period education, Vulvani
Co-Founder Vul­vani | britta@vulvani.com | Web­site | + posts

Britta Wiebe is the co-founder of Vul­vani. She loves research­ing, writ­ing and design­ing new art­icles or innov­at­ive edu­ca­tional con­cepts about men­stru­ation all day long. When she is not trav­el­ling the world, she enjoys spend­ing time with her loved ones in the beau­ti­ful city of Ham­burg in Germany.