Endo-what? You might be won­de­ring what’s behind the term? I felt the same way a few mon­ths ago! But after I have lear­ned more about the sub­ject, I seriously ask mys­elf how it is pos­si­ble that so few people have heard of the dise­ase? Because 1 in 10 mens­trua­ting people is affec­ted by endo­me­trio­sis.  

Endometriosis is more than just severe menstrual pain 

There is so much more to endo­me­trio­sis than just severe mens­trual pain. It is a chro­nic, very pain­ful and dif­fi­cult to treat dise­ase of people with an ute­rus. Out­side the ute­rine cavity, uncon­trol­led growths of the lining of the ute­rus form. These endo­me­trio­sis lesi­ons can grow and spread fur­ther. Unfor­tu­n­a­tely, the mucous mem­brane out­side the ute­rus is also sub­ject to hor­mo­nal chan­ges during the mens­trual cycle. The pro­blem here, howe­ver, is that the blee­ding takes place out­side the ute­rus and the mucous mem­brane can­not be pro­perly dischar­ged here and flow out of the body. In short, it is a bit like a mens­trual period, only in the wrong place. 

The unknown disease

Endo­me­trio­sis is not a phe­no­me­non of our cur­rent pro­spe­rous society, but has rather exis­ted for deca­des. It is one of the most com­mon chro­nic dise­a­ses in people with an ute­rus. Sta­tis­ti­cally spea­king, we should all eit­her know an affec­ted per­son our­sel­ves or at least know what endo­me­trio­sis is. But it is a dise­ase that is often invi­si­ble and unknown to the public. Because, as it often hap­pens with womxn dise­a­ses, endo­me­trio­sis has no lobby, no rese­arch funds. The lack of rese­arch also results in a lack of exper­tise and defi­cits in tre­at­ment. And so the cau­ses, sym­ptoms and tre­at­ment opti­ons are still rela­tively unknown.  

March is worldwide dedicated to endometriosis

For a few years now, March has been con­si­de­red ‘EndoM­arch’. This month, cam­pai­gns are taking place world­wide to pro­mote the visi­bi­lity and edu­ca­tion of endo­me­trio­sis in our society. After all, rai­sing awa­reness of invi­si­ble dise­a­ses is extre­mely important. The focus is not only on endo­me­trio­sis, but also on other rela­ted chro­nic dis­or­ders and pain­ful dise­a­ses, such as myoma ade­no­myo­sis. 

Wishes for the future 

It is time that more people know what endo­me­trio­sis is and that the dise­ase no lon­ger remains unknown in our society. People with endo­me­trio­sis need a voice, a lobby. Because it is time to break taboo topics and place womxn-spe­ci­fic topics in the heart of our society. This is the only way to get money inves­ted for rese­ar­ching  tre­at­ment opti­ons and iden­ti­fy­ing the cau­ses of the dise­ase. Because mens­trual pain is not nor­mal and this must be socially reco­gnised! 

Britta Wiebe, period education, Vulvani
Co-Foun­der Vulvani | britta@vulvani.com | Web­site | + posts

Britta Wiebe is the co-foun­der of Vul­vani. She loves rese­ar­ching, wri­ting and designing new arti­cles or inno­va­tive edu­ca­tio­nal con­cepts about mens­trua­tion all day long. When she is not tra­vel­ling the world, she enjoys spen­ding time with her loved ones in the beau­ti­ful city of Ham­burg in Germany.