Liv­ing with fibroids means more than very heavy bleeding

by Britta
Leben mit Myome, Leben mit Fibroide, starke Periode, Menstruation, Fibroide, Fibrome, Living with fibroids, Rosco Spears, Menstruation, Fibroids, Vulvani

Have you ever heard about uter¬≠ine fibroids? Uter¬≠ine Fibroids are abnor¬≠mal, non¬≠cancer¬≠ous growths in, on or around the uterus that appear dur¬≠ing the fer¬≠tile years. There can either just be one or a whole bunch of them. They can vary in size from just a lit¬≠tle seed up to as big as a grape¬≠fruit. Fibroids, also called myomas, can cause a vari¬≠ety of symp¬≠toms rang¬≠ing from very heavy peri¬≠ods, extreme abdom¬≠i¬≠nal pain or uri¬≠nary prob¬≠lems. Yet, not all peo¬≠ple liv¬≠ing with fibroids expe¬≠ri¬≠ence symp¬≠toms and most peo¬≠ple don‚Äôt know they even have uter¬≠ine fibroids. 

Liv­ing with fibroids

By the age of 50, as many as eight out of ten uterus own¬≠ers will have uter¬≠ine fibroids, mak¬≠ing it a com¬≠mon med¬≠ical issue. Despite the preva¬≠lence of the con¬≠di¬≠tion, it is yet another under-dis¬≠cussed topic of peo¬≠ple hav¬≠ing an uterus. The cause of fibroids is still unknown as lim¬≠ited atten¬≠tion on the con¬≠di¬≠tion of fibroids comes with lack of research and treat¬≠ment options. Today we are rais¬≠ing aware¬≠ness for what liv¬≠ing with fibroids looks likes by pub¬≠lish¬≠ing our inter¬≠view with Rosco Spears, who was diag¬≠nosed with hav¬≠ing fibroids eight years ago. Thank you so much, dear Rosco, for shar¬≠ing hon¬≠estly with us what your life and expe¬≠ri¬≠ences with fibroids looks like.

Wel­come! Please intro­duce yourself.

I‚Äôm Rosco Spears. I am a painter, teach¬≠ing artist, lover and part¬≠ner. And I am the cre¬≠ative direc¬≠tor for The Lip Bar, a vegan cos¬≠metic line based in Detroit, MI. I am cur¬≠rently liv¬≠ing in Bea¬≠con, NY.

myome, living with fibroid, rosco, Vulvani

Photo Cred­its: Rosco Spears

What was your med­ical his­tory until the final diag­no­sis of hav­ing fibroids?

For about 2 years, I expe¬≠ri¬≠enced very heavy bleed¬≠ing and cramp¬≠ing. In 2011 I started to seek answers about my body. I saw a few dif¬≠fer¬≠ent doc¬≠tors. They all agreed that I was just a heavy bleeder and there was noth¬≠ing to be con¬≠cerned about. I was pre¬≠scribed birth con¬≠trol, which caused me to bleed for 2 months straight, so I decided to just deal with the heavy bleed¬≠ing. I moved to New York in 2012 and started see¬≠ing new doc¬≠tors. It was then that I was diag¬≠nosed with hav¬≠ing fibroids. Dur¬≠ing this year, I lost a lot of blood, had my first blood trans¬≠fu¬≠sion and an abdom¬≠i¬≠nal myomec¬≠tomy was sug¬≠gested to remove the fibroids.

What is your expe­ri­ence with doctors?

My expe¬≠ri¬≠ence with doc¬≠tors has been a whirl¬≠wind. I‚Äôve real¬≠ized that with most doc¬≠tors, you will need to ask for an ultra¬≠sound (one of the few ways that fibroids can be diag¬≠nosed). I went years with doc¬≠tors telling me that I was just a heavy bleeder. It wasn‚Äôt until recently that I had a doc¬≠tor thor¬≠oughly explain fibroids to me by draw¬≠ing a dia¬≠gram and how the place¬≠ment of fibroids in or around the uterus can affect you dif¬≠fer¬≠ently. I‚Äôve also never had a doc¬≠tor tell me of any holis¬≠tic prac¬≠tices that could be done to help ease the pain and bleed¬≠ing. Vis¬≠it¬≠ing a doc¬≠tor has gen¬≠er¬≠ally been a lonely expe¬≠ri¬≠ence where I left with unan¬≠swered questions.

Leben mit Myome, Leben mit Fibroide, starke Periode, Menstruation, Fibroide, Fibrome, Living with fibroids, Rosco Spears, Menstruation, Menstruationsblut, Menstruationsklumpen, Periodenblut, Fibroids, unbekannte Krankheit, Frauengesundheit, Vulvani
Leben mit Myome, Leben mit Fibroide, starke Periode, Menstruation, Fibroide, Fibrome, Living with fibroids, Rosco Spears, Menstruation, Menstruationsblut, Menstruationsklumpen, Periodenblut, Fibroids, unbekannte Krankheit, Menstruationsbeschwerden, Regelschmerzen, Periodenschmerzen, Frauengesundheit, Vulvani

Photo Cred­its: Rosco Spears

Which symp¬≠toms do you have?

I was ane¬≠mic for years. I expe¬≠ri¬≠ence very heavy bleed¬≠ing and clot¬≠ting. Some¬≠times the clots are the size of my fist or larger (see above pic¬≠ture). I expe¬≠ri¬≠ence extreme fatigue when I am clot¬≠ting in large amounts. There are days where all I can do is go to the toi¬≠let and go back to bed because I don‚Äôt have energy for any¬≠thing else. When a clot is try¬≠ing to pass, the pain that is felt is inde¬≠scrib¬≠able. Med¬≠i¬≠cine no longer works for me. I‚Äôve also devel¬≠oped a heart mur¬≠mur due to my low lev¬≠els of blood. I finally got on Norethin¬≠drone, a birth con¬≠trol that was sup¬≠posed to reg¬≠u¬≠late my period. I bled every¬≠day for 15 months straight, begin¬≠ning in Octo¬≠ber of 2018. Now, I will expe¬≠ri¬≠ence clot¬≠ting and high lev¬≠els of pain when I‚Äôm in high stress sit¬≠u¬≠a¬≠tions or with intense workouts.

Which treat­ment options or ther­apy forms have you already tried?

In terms of treat¬≠ment, I‚Äôve tried some of every¬≠thing. I‚Äôve tried cut¬≠ting meat, soy and dairy. I‚Äôve tried acupunc¬≠ture. End¬≠less num¬≠bers of herbs and teas and yoni steam¬≠ing. I received my first surgery for fibroid removal, an abdom¬≠i¬≠nal myomec¬≠tomy in Sep¬≠tem¬≠ber of 2013.

Are there any every­day habits that help you to live bet­ter with fibroids?

Every¬≠day habits that make liv¬≠ing with fibroids eas¬≠ier include man¬≠ag¬≠ing my stress lev¬≠els. Mak¬≠ing sure that I take an iron sup¬≠ple¬≠ment daily. Cut¬≠ting soy and dairy from my diet and lim¬≠it¬≠ing my meat intake. Deep breath¬≠ing exer¬≠cises and sin¬≠cerely lis¬≠ten¬≠ing to my body also help a great deal.

Leben mit Myome, Leben mit Fibroide, starke Periode, Menstruation, Fibroide, Fibrome, Living with fibroids, Rosco Spears, Menstruation, Menstruationsblut, Menstruationsklumpen, Periodenblut, Fibroids, unbekannte Krankheit, Menstruationsbeschwerden, Regelschmerzen, Periodenschmerzen, Frauengesundheit, Vulvani

Photo Cred­its: Rosco Spears

What is liv­ing with fibroids like?

Life with fibroids is hard. It’s anx­i­ety induc­ing. Life with fibroids is hav­ing to carry an extra set of clothes to work because you may ruin your pants en route. It’s los­ing so much blood that you have to get blood trans­fu­sions, but you’re also used to liv­ing life half energized.

starke Periode, Menstruation, Fibroide, Fibrome, Living with fibroids, Rosco Spears, Menstruation, Menstruationsblut, Menstruationsklumpen, Periodenblut, Fibroids, unbekannte Krankheit, Menstruationsbeschwerden, Regelschmerzen, Periodenschmerzen, Frauengesundheit, Vulvani

Photo Cred­its: Rosco Spears

Do you have ques­tions about liv­ing with fibroids?

Thanks so much for help¬≠ing us learn more about liv¬≠ing with fibroids, dear Rosco! If you have more ques¬≠tions about uter¬≠ine fibroids, check out the non-profit Fibroid Foun¬≠da¬≠tion, who are ded¬≠i¬≠cated to shar¬≠ing knowl¬≠edge, treat¬≠ment options and gen¬≠eral infor¬≠ma¬≠tion about fibroids. They have also ini¬≠ti¬≠ated the Uter¬≠ine Fibroid Aware¬≠ness Month, which is every July (and inspired this inter¬≠view), to close the dis¬≠par¬≠i¬≠ties in health infor¬≠ma¬≠tion, research and lack of aware¬≠ness when it comes to liv¬≠ing with fibroids. As always, feel free to share your expe¬≠ri¬≠ences and sto¬≠ries with us, if you are affected with uter¬≠ine fibroids as well.

Published at 28. July 2020
Britta Wiebe is the co-founder of Vulvani. She loves researching, writing and designing new articles or innovative educational concepts about menstruation all day long. When she is not travelling the world, she enjoys spending time with her loved ones in the beautiful city of Hamburg in Germany. Facebook | Instagram | LinkedIn | Twitter

Our reading tips for you:

b.zine: sex edu­ca­tion through art and discourse

b.zine: sex edu­ca­tion through art and discourse

Sex is a natural part of society, but sex education is so often found to be lacking. This affects people throughout their lives, but particularly young people who are experimenting and having their first sexual experiences. Lilan, an Education Studies student from...

Med¬≠i¬≠ta¬≠tion for PMS ‚Äď Does it¬†work?

Med¬≠i¬≠ta¬≠tion for PMS ‚Äď Does it work?

Maybe you experience it yourself as a menstruating person or have heard it from others: the phase before menstruation can be characterized by irritability as well as mood swings. Physical changes may also occur, such as headaches, a feeling of tightness in the...

0 Comments

Submit a Comment

Your email address will not be published.

Pin It on Pinterest