‚ÄėNicht die Regel‚Äô: A Ger¬≠man film about endometriosis

von Britta
Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Ranya Schauenstein, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani

The Ger¬≠man doc¬≠u¬≠men¬≠tary ‚Äúnicht die Regel ‚Äď Ein Doku¬≠men¬≠tarfilm √ľber Endometriose‚ÄĚ aims to show that endometrio¬≠sis is not the norm. It aims to make the dis¬≠ease vis¬≠i¬≠ble to the pub¬≠lic and to com¬≠bat false myths about it. To make it clear how many peo¬≠ple are affected by endometrio¬≠sis, the doc¬≠u¬≠men¬≠tary is pro¬≠duced exclu¬≠sively by endometrio¬≠sis patients. The entire team con¬≠sists of cis-women who are them¬≠selves affected by the dis¬≠ease. In this inter¬≠view, ini¬≠tia¬≠tor Ranya Schauen¬≠stein gives us an insight into the mak¬≠ing of the doc¬≠u¬≠men¬≠tary and what the future holds for the film about endometrio¬≠sis. Many, many thanks for your impor¬≠tant edu¬≠ca¬≠tional work!

Can you please intro¬≠duce your¬≠self: Who is all on your team?

Yes, of course. On the team are: Ranya Schauen¬≠stein, I am the founder of the project. Dina Tasic is the art direc¬≠tor, Tabea Habl√ľtzel is our cam¬≠er¬≠a¬≠woman, Dora Wojna is the project man¬≠ager, Miriam Reichel is the edi¬≠tor, Vanessa Dworschak is the con¬≠tent cre¬≠ator and Saskia H√∂fer takes care of press inquiries and spon¬≠sor¬≠ing. Last but not least: off-speaker is Carina Frei.

Die Doku ‚Äúnicht die Regel - Ein Dokumentarfilm √ľber Endometriose‚ÄĚ m√∂chte zeigen, dass Endometriose eben nicht die Regel ist. Er soll die Krankheit in der √Ėffentlichkeit sichtbar machen und die falschen Mythen dazu bek√§mpfen. Um zu verdeutlichen, wie viele Personen von Endometriose betroffen sind, wird der Dokumentarfilm ausschlie√ülich von Endometriose-Patientinnen produziert. Das gesamte Team besteht aus Cis-Frauen, die selbst von der Krankheit betroffen sind. Im Interview gibt uns die Initiatorin Ranya Schauenstein Einblicke in die Entstehungsgeschichte der Doku und wie es mit dem Film √ľber Endometriose weitergehen soll. Vielen, vielen Dank f√ľr eure wichtige Aufkl√§rungsarbeit!

Ranya Schauen¬≠stein and Tabea Habl√ľtzel // Photo Cred¬≠its: Nicht die Regel

How did you get the idea to make a film about endometrio¬≠sis? How did you find each other as a team?

As I got I did a lot of research, but sim¬≠ply couldn‚Äôt find a full-length doc¬≠u¬≠men¬≠tary about endometrio¬≠sis in Ger¬≠man. I had wanted to make a doc¬≠u¬≠men¬≠tary for a while and then decided to make a film about endometrio¬≠sis. Together with my friend Dina, our art direc¬≠tor, we looked on Face¬≠book for other women with endometrio¬≠sis and very quickly put together a team of seven women. In June Saskia joined as the eighth mem¬≠ber. All my col¬≠leagues have endometrio¬≠sis, just like me. That con¬≠nects us, even though each of us has made her own expe¬≠ri¬≠ences. We have a com¬≠mon desire to make a dif¬≠fer¬≠ence and edu¬≠cate more peo¬≠ple about this dis¬≠ease. That brings us together.

How has your jour¬≠ney been from the idea to where you are now?

The idea for the film about endometrio¬≠sis came in 2019. I started a open call and used Face¬≠book to look for women who have endometrio¬≠sis and work in the film indus¬≠try. The goal was to make a state¬≠ment: It affects so many women that a team of peo¬≠ple affected can be put together quickly. We then looked for affected women who were will¬≠ing to talk about their expe¬≠ri¬≠ences in front of the cam¬≠era. I was com¬≠pletely touched by each indi¬≠vid¬≠ual story. When¬≠ever a woman con¬≠fided in me and openly told me about the pain she had to deal with due to endometrio¬≠sis dur¬≠ing her period or in gen¬≠eral, it strength¬≠ened my deter¬≠mi¬≠na¬≠tion to make this film.

The doc¬≠u¬≠men¬≠tary is not only intended to cre¬≠ate aware¬≠ness, but also to com¬≠bat myths sur¬≠round¬≠ing endometrio¬≠sis. That is why we have sought the sup¬≠port of lead¬≠ing endometrio¬≠sis experts and have tried to pro¬≠vide a very com¬≠pre¬≠hen¬≠sive, inter¬≠dis¬≠ci¬≠pli¬≠nary insight. This dis¬≠ease affects us women not only dur¬≠ing our peri¬≠ods, but also when we go to work, in our free time and in our pri¬≠vate lives ‚Äď in inti¬≠mate moments and when we think about fam¬≠ily plan¬≠ning. This is why not only gyne¬≠col¬≠o¬≠gists, but also a psy¬≠chol¬≠o¬≠gist, a phys¬≠io¬≠ther¬≠a¬≠pist, a for¬≠mer politi¬≠cian, as well as doc¬≠tors from the fer¬≠til¬≠ity cen¬≠ter and oth¬≠ers are talk¬≠ing about it. The film is now in post-pro¬≠duc¬≠tion. We want to fin¬≠ish pro¬≠duc¬≠ing the doc¬≠u¬≠men¬≠tary with our cur¬≠rent crowd¬≠fund¬≠ing cam¬≠paign and bring it to the big screen.

Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Ranya Schauenstein, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani
Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Ranya Schauenstein, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani

Photo Cred¬≠its: Nicht die Regel

What is it like to work in a team where every¬≠one has endometriosis?

We are eight women and all affected, so we are very com¬≠mit¬≠ted to the project. Because we do it vol¬≠un¬≠tar¬≠ily along¬≠side our jobs, the film¬≠ing took a while. We also shot dur¬≠ing Corona, and that didn‚Äôt stop us either. The film is now fin¬≠ished and we are in the post-pro¬≠duc¬≠tion phase. When eight women have endometrio¬≠sis, it‚Äôs obvi¬≠ous that it takes patience. For exam¬≠ple, on some days a team mem¬≠ber spon¬≠ta¬≠neously dropped out because of endometrio¬≠sis. On long days of shoot¬≠ing we tried to select meals accord¬≠ing to the dietary rec¬≠om¬≠men¬≠da¬≠tions for endometrio¬≠sis. In addi¬≠tion, we all showed great under¬≠stand¬≠ing if some¬≠one had to leave the set early or did not feel well for a moment ‚Äď this is part of the job for a team of peo¬≠ple who are all affected.

We often exchanged ideas and gave each other tips dur¬≠ing shoot¬≠ing breaks or zoom meet¬≠ings. The inter¬≠views with the experts and pro¬≠tag¬≠o¬≠nists were very excit¬≠ing and enrich¬≠ing for every¬≠one, because we found our¬≠selves in many sto¬≠ries. That was there¬≠fore very inspir¬≠ing. We are not only a film team, but by now also friends and a kind of self-help group that encour¬≠ages each other. The ‚Äúwork‚ÄĚ has grown close to our hearts. So yes, it needs patience. But it is worth it. It was also an incred¬≠i¬≠bly empow¬≠er¬≠ing time and we fin¬≠ished a film in about 1.5 years, shot it and then took it through post-pro¬≠duc¬≠tion ‚Äď includ¬≠ing two lock¬≠downs. I am proud of our team!

What has been your favorite moment so far, while turn­ing your project into reality?

Wow, that‚Äôs hard to answer, because there are quite a few moments.
‚Äď Our first meet¬≠ing as a team in the Caf√©haus ‚Äď long before Corona
‚Äď When the CI by Dina was deter¬≠mined final
‚Äď Our first inter¬≠view with one of the three pro¬≠tag¬≠o¬≠nists
‚Äď The con¬≠fir¬≠ma¬≠tion of cer¬≠tain experts such as J√∂rg Keck¬≠stein
‚Äď A par¬≠tic¬≠u¬≠larly emo¬≠tional moment dur¬≠ing the inter¬≠view with Anna Wilken
‚Äď Go live of our web¬≠site www.nicht-die-regel.at and Social Media pages‚Äď The start of our Crowd¬≠fund¬≠ing
‚Äď Dari¬≠aDaria shares our project and our fol¬≠low¬≠ing skyrockets

What is your wish and hope for your film about endometriosis?

I have such a big dream, but even if only a lit¬≠tle bit of it comes true, I would love it. If our film could help to ensure that at some point a woman or girl no longer has to ask her¬≠self: ‚ÄúWhat is endometrio¬≠sis?, that would be great.

It would be inge¬≠nious if we could con¬≠tribute to short¬≠en¬≠ing the long diag¬≠nos¬≠tic paths by mak¬≠ing soci¬≠ety aware of the exis¬≠tence of the dis¬≠ease. It would be great if the doc¬≠u¬≠men¬≠tary could help to min¬≠i¬≠mize the dreaded stigma. Women who fear for their jobs or career oppor¬≠tu¬≠ni¬≠ties because they could be con¬≠sid¬≠ered ‚Äúnot resilient‚ÄĚ because of endometrio¬≠sis. It would be nice if the film about endometrio¬≠sis became an essen¬≠tial part of edu¬≠ca¬≠tion. And for me, that is irrel¬≠e¬≠vant for the time being, whether it is in schools, for future man¬≠agers, in med¬≠i¬≠cine or alter¬≠na¬≠tive treat¬≠ment meth¬≠ods. Every woman should be informed, because only in this way can we make a reflected deci¬≠sion for our bodies.

Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani

Dr. Nadja Fritzer

Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani

Tabea Habl√ľtzel

Photo Cred¬≠its: Nicht die Regel

Nicht die Regel, Film √ľber Endometriose, Doku √ľber Endometriose, Crowdfunding, Startnext, movie about endometriosis, endometriosis, documentary, period pain is not normal, sehr starke Regelschmerzen, unbekannte Krankheit, Vulvani

Ranya Schauen¬≠stein and Tabea Habl√ľtzel

What are the reac­tions when shar­ing about your documentary?

Mostly good. Many women are enthu¬≠si¬≠as¬≠tic about our project and I notice that the reac¬≠tions are some¬≠times split. Not in ‚Äúfor‚ÄĚ and ‚Äúagainst‚ÄĚ, but rather in ‚ÄúOh great, this is really impor¬≠tant‚ÄĚ and ‚ÄúEndometrio¬≠sis, what is it?‚ÄĚ And that is exactly our moti¬≠va¬≠tion in a nutshell. 

What do you find par­tic­u­larly excit­ing in the edu­ca­tional work about endometriosis?

When women do not know what endometrio¬≠sis is and then learn about it, some¬≠thing extra¬≠or¬≠di¬≠nary hap¬≠pens. Many peo¬≠ple won¬≠der why there is still too lit¬≠tle infor¬≠ma¬≠tion about endometrio¬≠sis when so many are affected. How is it that in 2020 we still do not know where the dis¬≠ease comes from? This lack of under¬≠stand¬≠ing is pre¬≠cisely what dri¬≠ves us. There is some¬≠thing encour¬≠ag¬≠ing about it, because it makes us feel that what we are doing is right. 

What is the next step for your film about endometriosis?

Suc¬≠cess¬≠fully com¬≠plet¬≠ing our crowd¬≠fund¬≠ing cam¬≠paign. We are cur¬≠rently at about half of our fund¬≠ing tar¬≠get. We want to col¬≠lect 19,000 Euro by Decem¬≠ber 8, 2020. If we don‚Äôt achieve our fund¬≠ing tar¬≠get, we won‚Äôt get the money we‚Äôve col¬≠lected until then. So it is all or noth¬≠ing for us. I am con¬≠vinced that we will suc¬≠ceed. And we are com¬≠mit¬≠ted to it! 

YouTube video

Why do we need a full-length doc¬≠u¬≠men¬≠tary film?

Many women accept extreme pain as nor¬≠mal because this dis¬≠ease is unknown and can be very asymp¬≠to¬≠matic. The media response to this is now increas¬≠ing, e.g. with mag¬≠a¬≠zine arti¬≠cles, arti¬≠cles and pod¬≠cast episodes or con¬≠tri¬≠bu¬≠tions on radio and tele¬≠vi¬≠sion. But there is no fea¬≠ture-length doc¬≠u¬≠men¬≠tary film.

There are many aspects that can be dis¬≠cussed in rela¬≠tion to endometrio¬≠sis. How dif¬≠fer¬≠ently the dis¬≠ease can occur and progress. The state of med¬≠ical research. How women make the really coura¬≠geous deci¬≠sion to have an oper¬≠a¬≠tion ‚Äď some¬≠times even sev¬≠eral times ‚Äď or ulti¬≠mately to have their uterus removed. Invol¬≠un¬≠tary child¬≠less¬≠ness. The ques¬≠tion: How far do I go for my desire to have chil¬≠dren? Myths about the dis¬≠ease, for exam¬≠ple ‚Äúendometrio¬≠sis auto¬≠mat¬≠i¬≠cally means infer¬≠til¬≠ity‚ÄĚ, ‚Äúendometrio¬≠sis is cur¬≠able‚ÄĚ etc. Ques¬≠tions about ‚Äúhav¬≠ing to bear pain‚ÄĚ and pub¬≠lic debates about peri¬≠ods and the break¬≠ing of taboos. Edu¬≠ca¬≠tion of med¬≠ical pro¬≠fes¬≠sion¬≠als. How should the labor mar¬≠ket react to women with endometrio¬≠sis? After all, the body ‚Äúcycles‚ÄĚ dur¬≠ing office hours. What are the psy¬≠cho¬≠log¬≠i¬≠cal effects of this chronic disease?

A con¬≠tin¬≠u¬≠a¬≠tion of the documentary ?

There are so many angles from which endometrio¬≠sis can be looked at. And these are gen¬≠eral ques¬≠tions. Every woman has a dif¬≠fer¬≠ent route with the dis¬≠ease. It is really dif¬≠fi¬≠cult to choose a first focus. But who knows, maybe there will be a con¬≠tin¬≠u¬≠a¬≠tion. *Wink* 

INFO-BOX: The crowd¬≠fund¬≠ing cam¬≠paign will run on Start¬≠next until Decem¬≠ber 8, 2020, in order to be able to pay for pre¬≠vi¬≠ous ini¬≠tial pro¬≠duc¬≠tion costs and to secure financ¬≠ing of the pro¬≠fes¬≠sional post-pro¬≠duc¬≠tion. We can all be help¬≠ing in mak¬≠ing endometrio¬≠sis bet¬≠ter known!

Veröffentlicht am 24. November 2020
Von Britta
Britta Wiebe ist die Co-Gr√ľnderin von Vulvani. Am liebsten recherchiert, schreibt und konzipiert sie den ganzen Tag neue Artikel oder innovative Bildungsformate rund um Menstruation. Wenn sie nicht in der weiten Welt unterwegs ist, genie√üt sie ihre Zeit mit lieben Menschen im sch√∂nen Hamburg. | Facebook | Instagram | LinkedIn | Twitter

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