In the sec­ond part of our inter­view, Lea tells us how liv­ing with endometrio­sis changes every­thing and what helps her in her every­day life. You can read the first part of the inter­view with Lea here.

How do you feel about liv­ing with endometriosis? 

I have come to terms with my endometrio­sis. It is a part of me that will accom­pany me for a very long time. That’s why I can’t fight against it for­ever and have accepted it as it is. She is just my silent com­pan­ion who gets loud from time to time and brings me to my knees. But that’s ok for me, I can han­dle it

How does endometrio­sis affect your every­day life? 

In the begin­ning endometrio­sis affected my every­day life a lot. I thought about it all the time and had a hard time push­ing it away. In the mean­time, how­ever, I try to focus on the here and now and spec­u­late less about future con­tin­gen­cies that may never hap­pen. That helps me a lot! Of course, this is often dif­fi­cult due to the every­day pain and prob­lems, but I have now found quite good ways to focus on some­thing else.

Endometrio­sis often lim­its activ­i­ties, but I, or rather we, have come to terms with that and I am no longer annoyed when it throws a span­ner in the works. In the end, I didn’t choose all this and I can’t change much about it. But I can influ­ence how I deal with it and whether I let it drag me down – and I try to stay pos­i­tive as much as pos­si­ble, no mat­ter what happens.

Are there any daily habits that help you live with endometrio­sis more comfortably?

My pain is chronic and there­fore almost daily. At first it was hard for me. Most of the time I did noth­ing, stayed on the sofa because I wasn’t feel­ing well. But that didn’t make it any bet­ter, in fact it some­times made it worse. That’s why I decided at some point that I can’t put my life on hold for­ever. There­fore, I returned to sports: horse­back rid­ing, going for walks, yoga. Espe­cially when I am in pain. Of course, it’s often hard for me to get on the horse and do jump­ing or dres­sage train­ing when every­thing hurts. There have been times when I just couldn’t do it. Often times it helps me to focus com­pletely on some­thing else. On bad days I do some­thing light, just go for a walk or do a relaxed yoga ses­sion.  On bet­ter days I like to do more.

Leben mit Endometriose, Endometriose, Bewegung bei Endometriose, Schmerzen bei Periode, Schmerzen durch Endometriose, Ernährung bei Endometriose, Alltag Endometriose, Hilfe bei Endometriose
Leben mit Endometriose, Endometriose, Bewegung bei Endometriose, Sport bei Endometriose,Schmerzen bei Periode, Schmerzen durch Endometriose, Ernährung bei Endometriose, Hilfe bei Endometriose

Photo Cred­its: Lea

Nutri­tion

I have always been keen on my diet, also before the diag­no­sis, any­way, so I hon­estly haven’t adjusted any­thing yet. I’ve been doing inter­mit­tent fast­ing for sev­eral years now, which means I fast for at least 16 hours every day. Most of the time, the food is then con­cen­trated on one very large but healthy meal in the evening. Lots of salad and veg­eta­bles, some fish and cheese, hardly any meat and gen­er­ally almost no prod­ucts con­tain­ing gluten. How­ever, I don’t let myself be deprived of sweets from time to time. Since my diag­no­sis, I have also con­sid­ered elim­i­nat­ing or replac­ing dairy prod­ucts, but I failed. Cof­fee with organic milk sim­ply tastes much bet­ter to me than with almond/oat or rice milk. In addi­tion to that, I have also con­sid­ered a com­pletely anti-inflam­ma­tory diet, but so far I haven’t imple­mented it.

How has your life changed since your diagnosis?

Of course, liv­ing with endometrio­sis has slowed down a lot of things. My stud­ies have been kind of on hold for a while because I just can’t really get on with it. Nev­er­the­less there are also pos­i­tive sides: I’ve become much more open – I think that’s also the biggest change. I never thought I would be able to talk so openly about my ill­ness, but it helps me and so many oth­ers. I get a lot in return, a lot of grat­i­tude and appre­ci­a­tion, some­times from com­plete strangers – that encour­ages me to do the right thing. More­over I get an incred­i­ble amount of under­stand­ing from friends because I talk about it so openly. Every­one knows where they stand. That often makes things eas­ier for me.

Through endometrio­sis and the edu­ca­tional work that I am now try­ing to do, I have found some­thing that I believe in, that gives me mean­ing and is incred­i­bly fun – and that is worth a lot.

What inspired you to cre­ate your blog?

When I first sus­pected I had endometrio­sis, I scoured the entire inter­net for infor­ma­tion. Sci­en­tific arti­cles, stud­ies, YouTube chan­nels, blogs, Insta­gram accounts – I prob­a­bly know them all. But still, there was usu­ally some­thing miss­ing for me: some­times a detailed descrip­tion or a per­sonal insight or a med­ical expla­na­tion. There­fore, I quickly had the thought that I would like to fill exactly this gap. That’s how my blog and then also my Youtube chan­nel came into being.

living with endometriosis, endometriosis treatment, acne, period pain, leakrssl, lea, Vulvani, endometriosis,
Endometriosis surgery, living with endometriosis, endometriosis treatment, acne, period pain, leakrssl, lea, Vulvani, endometriosis,

Photo Cred­its: Lea

Do you have any tips or ideas on how friends + fam­ily can help some­one liv­ing with endometriosis?

I think the most impor­tant thing I can say is: try to under­stand us and take us seri­ously! The worst thing is when some­one dis­misses what you’re going through or doesn’t show under­stand­ing when we some­times can’t do what we’d like to do. Liv­ing with endometrio­sis can be a huge bur­den – every­one deals with it dif­fer­ently. Try to be sen­si­tive to those affected, lis­ten to what they have to say or even accept it if they don’t want to say any­thing about it. It is not easy, I know that myself. But it takes a lot of pres­sure off when you know that there is some­one you can rely on, who takes you seri­ously and under­stands what is going on.

Leben mit Endometriose, Endometriose, Bewegung bei Endometriose, Schmerzen bei Periode, Schmerzen durch Endometriose, Ernährung bei Endometriose, Alltag Endometriose, Hilfe bei Endometriose

Photo Cred­its: Lea

Thank you Lea!

If you have ques­tions about endometrio­sis or want to learn more about the dis­ease and liv­ing with endometrio­sis, please check out Lea’s blog, Insta­gram and YouTube chan­nel

Britta Wiebe, period education, Vulvani
Britta 
Co-Founder Vul­vani | britta@vulvani.com | Web­site | + posts

Britta Wiebe is the co-founder of Vul­vani. She loves research­ing, writ­ing and design­ing new arti­cles or inno­v­a­tive edu­ca­tional con­cepts about men­stru­a­tion all day long. When she is not trav­el­ling the world, she enjoys spend­ing time with her loved ones in the beau­ti­ful city of Ham­burg in Germany.